Single Family Voices - For Single Parents Online Single Parent Forums Dealing with Special Needs Children Sensory Integration Dysfunction|
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"-" At A loss for Words - NOT! |
Has anyone heard of SID? I've seen a few posts re: PPD/Aspergers, I thought I'd share this with you. It usually applies to children with Autism, but it also applies with children with ADD/ADHD, Learning Disability, brain-injury ..
I'm curious to know everyone's opinion on this. I'm currently looking into it for my son. I know a child who looks 100% typical in all areas but had difficulties in reading/writing. It turned out he had a mild case of SID - something to do with his auditory intake was affecting his learning. Signs/Symptoms for Sensory Integration Dysfunction Attention, Behavior And Social: Jumps from one activity to another frequently and it interferes with play Has difficulty paying attention Is overly affectionate with others Seems anxious Is accident prone Has difficulty making friends, does not express emotions Auditory: Responds negatively to unexpected or loud noises Holds hands over ears Cannot walk with background noise Seems oblivious within an active environment Visual: Prefers to be in the dark Hesitates going up and down steps Avoids bright lights Stares intensely at people or objects Avoids eye contact Taste/Smell: Avoids certain tastes/smells that are typically part of children's diets Routinely smells nonfood objects Seeks out certain tastes or smells Does not seem to smell strong odors Body Position: Continually seeks out all kinds of movement activities Hangs on other people, furniture, objects, even in familiar situations Seems to have weak muscles, tires easily, has poor endurance Walks on toes Movement: Becomes anxious or distressed when feet leave the ground Avoids climbing or jumping Avoids playground equipment Seeks all kinds of movement and this interferes with daily life Takes excessive risks while playing, has no safety awareness Touch: Avoids getting messy in glue, sand, finger paint, tape Is sensitive to certain fabrics (clothing, bedding) Touches people and objects at an irritating level Avoids going barefoot, especially in grass or sand Has decreased awareness of pain or temperature |
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Learning to Surf The Board |
When my daughter was in childcare a few years ago, she attended a center geared toward assisting children with special needs. Although she was enrolled in the "regular" daycare (I hate to call it that), all the teachers shared in both programs and were trained accordingly. One of her teacher's was concerned with her behaviour, particularly in the way my daughter interacted with her surroundings and playtime activities. They had ruled out ADHD, but felt she had some "sensory issues" and had mentioned SID. The best was they had described it to me was the figurative use of eating a cold orange on a hot day. While this would generally be viewed as a cool and refreshing treat, a child with SID would not view this as such. It would be something as basic as the colour or shape or even the texture that would be their focus, instead of something cool and wet.
Anyway, she attended sessions with a teacher there who was able to assist her with these issues. Just a word of caution: be very careful before you affix a "label" to your child. I've talked to too many parents who read an article and decided that is just what their child has and took steps to actually enforce their misconceptions! Hope this bit of info on dealing with SID helps you out. |
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"-" At A loss for Words - NOT! |
Was your daughter diagnosed with SID? If so, what does the therapy look like? I've performed therapies myself for sensory, but I work with children with autism << they're at the extreme level of SID, so I'm not sure what it looks like for children with milder cases.
I understand what you mean about "labels". My situation is a little different though. When my son was born, he had a series of difficulties. Blood was detected in his brain in 2 areas; he was arching his back; his head was swollen from excess fluid, a cut on his scalp was detected [vaccuum extractor was used]; and on the list goes. The doctors were never able to tell me what the long term effects would have on him and eventually diagnosed him with low muscle tone << "possibly" due from the use of the vaccuum. He was delayed in all areas of development [up to 6-8mo] and underwent therapies all of his life. Now, he's caught up with his fine/gross motor skills and looks like a "typical" child. He's delayed in speech and language and we're working on that. I'm telling you all this for a reason. I always wondered what the long term effects would be. I was told that I would never fully understand until he reached school-age. He is now 4. I can already tell he's facing other challenges. I can't pin-point the cause exactly but they're there. So in my situation, I'm LONGING for that "label", so I can help him work around it. I know my family tells me not to worry, he's fine. But they don't see what I see. I'm not necessarily "worried" but I do want to help him out the best way I know how. When I came across the info on SID, I found he had a lot of its characteristics. I know its hard to differentiate one label from the next at this point but it's where I've decided to start. I'm hoping his pediatrician won't brush me off as she did a year ago. I don't like playing the waiting game. Anyway, if you or anyone has any word of advice on this topic, please let me know. I'm looking at all possibilities.  |
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Learning to Surf The Board |
By all means, if your pediatrician is brushing you off, find another or check out your local network of child services affiliates. The daycare my daughter attended was supported thru local, state and federal agencies and the assistance provided for SID was at no charge. I remember I had to fill out a lenghtly questioneer regarding her mannerisms, social behaviour, sleep habits... things like that. And again, she was on the low end of the scale as far as SID, exhibiting only a few of the characteristics.
She is 7 now and in second grade. She did not show any sensory problems when she was very little, although she was always extremely active. She was one of those up all night, colicy, sleep during the day babies. She spoke her first word at five months and three and four word sentences at one year. However, she did not sit up til eight months, crawled at around a year old and did not take her first step til 17 months. She is still extremely active, often has a difficult time focusing on schoolwork which does not interest her and is very apprehensive when her daily routine is interrupted; and there are certain foods she will not even try simply because of the way they look or smell. She is also very bright and imaginative. I try to put off these other things as maybe her way of trying to deal with my recent divorce or just her own way of expressing herself, but she is my first and only (and last) child, so I'm sure I have things to learn, as well. I would definitly check and see what is available in your area and persist until you get the answers you need. Please let me know how you make out. If I can find any info for the Vancouver area, I'll let you know. |
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"-" At A loss for Words - NOT! |
Thanks for sharing. Luckily for us, my son has been in the system for quite some time now - well, all of his life.
He currently has a support worker who comes into his daycare once a month to observe, but merely there as a resource. I've sent her the info on SID's and outlined all of the characteristics that applied to him. She told me she made a few contacts on my behalf and is waiting to hear if I would qualify for a one-time consultation with the Occupational Therapist. They're usually the ones who assess for SID. From there, they'll be able to determine whether or not to open a file. It may be a long shot and if I'm wrong, at least the process of elimination is granted. Thanx Donna, jes |
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Board Member |
my son is autistic and has SID as well,most auti kids do have sensory problems. he was seeing an OT for a year- for awhile he had hearing sensitivity no1 could be loud around him or he'd freak out. we had to whisper happy bday to him last yr. it was pretty bad,but hes getting better with noises,bought him some earphones that he would wear occasionally when we were out in public places. |
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Board Member |
Jes,
My best friend's son was diagnosed with SID when he was four and subsequently diagnosed with ADHD at 6. (She is also a single parent) He saw an occupational therapist who was absolutely wonderful giving my friend suggestions for simple behavioral interventions that really helped both at home and at school. Check out "The Out-of-Sync Child" and "The Out-of-Sync Child has Fun" by Carol Stock Kranowitz. There's also a website www.out-of-sync-child.com with info. The book helped her a lot in discussing his condition with doctors and teachers. She also had some trouble getting people to listen to her...they wanted to just give him a blanket label of ADHD...but she knew that there was something else going on. She also bought a copy of the book to give to her son's teacher prior to the school year starting so she would have a better idea of his needs. By the way, her son is now nine and in the gifted program in our school system...so don't let your child's teachers let a "label" determine your child's strengths, goals, etc. |
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"-" At A loss for Words - NOT! |
The Out-of-Sync-Child sounds familiar to me. I'll have to take a look at the book so I be more prepared for my son's doctor's appointment, coming up mid-january. Thanxs for the recommendation. I did check out that site and it was quite interesting.
Thanx again, jes |
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"-" At A loss for Words - NOT! |
Keirmeg, I was able to get myself a copy of the Out-of-Sync Child Has Fun [Activities for Kids with SID]. It has a tone of useful activities for all kinds of sensory needs. I recommend it.
They didn't have that book you recommended so I bought: The Sensory-Sensitive Child [Practical Solutions for Out-of-Bounds Behaviour]. It's a great book as well. Jes |
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Board Member |
Jes,
That's great to hear! You might check online at the Barnes & Noble website for the other one. Good luck with figuring out some solutions with your son and if you'd like more info or just want to talk with someone who's been there, I'd be more than happy to put you in touch with my friend. She'd love to talk and pass on what she's learned dealing with SID and her son, teachers, etc.(and trust me, she can be quite the talker )Meg |
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"-" At A loss for Words - NOT! |
Oh thank you. That sounds great. I'm going to talk with his pediatrician in mid january first. See what she has to say about it all. I hope we won't have to wait too long for a thorough evaluation to get done. I want this done ASAP.
I'll keep you in mind. Thanx! jes |
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"Mod Member on Board" Parent on Board |
A book that is a little bit more understandable about SID is raising a sensory smart child it is written by an OT and a parent. My daughter was diagnosed with SID and has been recieving OT for a while now. One thing about SID is that it can be to one extreme one day and another the next. One day you would think my daughter was deaf things like firetrucks going past wouldn't even phase her then two days latter she is screaming and terrified of it. I really would suggest the book mentioned in other post and the one I suggested they both have good check list etc. Also if your child is under 3 call your local early intervention programs and request testing. If over 3 check with local school district by law they have to provide you with testing. please PM me if you have any qestions
Shannon educator and mother of children with SID |
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I am New to SFV |
I have been having trouble with my 4 y/o daughter. She has had a lot of trouble in school and daycare. I've noticed since she was a baby that she had trouble adjusting to things a lot harder then other children. She has recently got expelled from daycare for slapping others. Hevin was born 5 1/2 weeks early and spent a month in NICU. They told me she had a small brain hemorrhage and they wasn't sure what the affect would be when she grew up. Hevin has a hard time sleeping, I can change anything in the house without her having a tantrum, she can stand for her pants to be on her stomach, and she gets very frustrated over a lot of things. A person from her school told me yesterday she wants to have an OT evaluation done on her for SID. I have been reading on SID's and a lot of it sounds like Hevin. Me and the director of the daycare have been trying all kinds of things to help Hevin in her behavior. I'm hoping to find out what's been going on with her. She has been tested for ADD/ADHD and they said she doesn't have it. We do know she has development delays in speech, and motor. I just hope they can help in finding out what is going on so I can start helping her.
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"Active Board Parent" Board Blazen Parent |
Hi there...
Just wondered if any of you have heard of or used a Snoezelen room? |
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I am New to SFV |
It's hard enough to be a parent without extra issues. I'm not a doctor, but I see a lot of kids...I do rotary between two schools. The first thing that comes to mind when I read your post is autism. Has any of the doctors considered this? |
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Single Family Voices - For Single Parents Online Single Parent Forums Dealing with Special Needs Children Sensory Integration Dysfunction